B2B Data Sharing Plan

PCGC Sharing Plan
Qualified, external researchers (non-B2B, non-ancillary studies) may access the genotype and phenotype datasets submitted and stored at dbGaP. A Data Access Committee (DAC) will oversee access to PCGC data contained in dbGaP. Investigators who wish to access shared data must complete a Data Use Certification, which is reviewed and approved by the DAC. Membership of the DACs will include Federal staff with relevant expertise in areas such as the relevant particular scientific disciplines, research participant protection, and privacy.

Investigators interested in accessing CHD GENES biospecimens should submit a proposal for an ancillary study.