PHN Centers

Belgium

Ghent University

Ghent, Flanders, Belgium
PI: Dr. Julie DeBacker
Coordinator: Sylvia De Nobele
Phone Number: 32-9-332.63.39
E-mail address: sylvia.denobele@ugent.be
Enrolling patients in the following studies:
Marfan

Canada

The Hospital For Sick Children

Toronto, Ontario, Canada
PIs: Dr. Brian McCrindle
Dr. Steven Schwartz
Dr. Seema Mital
Coordinator: Liz Radojewski, RN
Phone Number: 1-866-613-7778
Email: elizabeth.radojewski@sickkids.ca
Enrolling patients in the following studies:
Single Ventricle Reconstruction Extension Study
Fontan Follow-up Study
Marfan

Toronto General Hospital - UHN

Toronto, Ontario, Canada
PI: Dr. Tim Bradley
Coordinator: Liz Radojewski, RN
Phone Number: 1-866-613-7778
Email: elizabeth.radojewski@sickkids.ca
Enrolling patients in the following studies:
Marfan

California

Stanford University

Stanford, CA
PI: Dr. David Liang
Coordinator: Elizabeth Merkel, RN
Phone Number: 650-736-0644
E-mail address: merkel@stanford.edu
Enrolling patients in the following studies:
Marfan

Cedars-Sinai Medical Center

Los Angeles, CA
PI: Dr. David Rimoin
Coordinator: Mitchel Pariani MS
Phone Number: 310-423-9861
E-mail address: Mitchel.Pariani@cshs.org
Enrolling patients in the following studies:
Marfan

Heart Institute, Rady Children's Hospital - UCSD School of Medicine

San Diego, CA
PI: Dr. Paul Grossfeld
Coordinator: Terri McLees-Palinkas MS, CCRC
Phone Number: 858-966-8066
E-mail address: tmclees@rchsd.org
Enrolling patients in the following studies:
Marfan

Delaware

Nemours Cardiac Center

Wilmington, DE
PI: Christian Pizarro, MD
Coordinator: Carol Prospero
Phone Number: 302-651-6686
E-mail address: cprosper@NEMOURS.ORG
Enrolling patients in the following studies:
Single Ventricle Reconstruction Extension Study

District of Columbia

Children's National Medical Center

Washington, DC
PI: Craig Sable, MD
Coordinator: Sridhar Hanumanthaiah
Phone Number: 202-476-4970
E-mail address: SHanuman@childrensnational.org
Enrolling patients in the following studies:
Pediatric Echocardiography Z-Score and Electrocardiogram Database Project

Florida

Congenital Heart Institute of Florida

University of South Florida
Tampa, FL
PI: Dr. Jeff Jacobs
Coordinator: Tracey Griffith
Phone Number: 727-822-6666
E-mail address: tgriffith@heartsurgery-csa.com
Enrolling patients in the following studies:
Single Ventricle Reconstruction Extension Study

Georgia

Children's Health Care of Atlanta

Emory University
Atlanta, GA
PI: Dr. William Mahle
Dr. William Border
Coordinator: Jeryl Huckaby RRT, BS, CCRC
Phone Number: 404-785-0040
E-mail address: jeryl.huckaby@choa.org
Enrolling patients in the following studies:
Single Ventricle Reconstruction Extension Study

Illinois

Children's Memorial Hospital

Chicago - Northwestern University
PI: Dr. Luciana Young
Coordinator: Megan Domenico
Phone Number: 773-880-8331
E-mail address: mdomenico@childrensmemorial.org
Enrolling patients in the following studies:
Marfan

Maryland

Johns Hopkins University

Baltimore, MD
PI: Dr. Hal Dietz
Coordinator: Mary Rykiel, BSN
Phone Number: 410-502-2014
E-mail address: mrykiel1@jhmi.edu
Enrolling patients in the following studies: Marfan

Massachusetts

Children's Hospital Boston

Boston, MA
PIs: Dr. Jane Newburger
Dr. John Triedman
Coordinator: Carolyn Dunbar-Masterson, RN, BSN
Phone Number: 617-355-4201
E-mail address: Carolyn.dunbar-masterson@cardio.chboston.org
Enrolling patients in the following studies:
Single Ventricle Reconstruction Extension Study
Fontan Follow-up Study
Marfan

Michigan

University of Michigan

Ann Arbor, MI
PIs: Dr. Caren Goldberg
Dr. Richard Oliye
Coordinator: Karen King
Phone Number: 734-615-4899
E-mail address: kaking@umich.edu
Enrolling patients in the following studies:
Single Ventricle Reconstruction Extension Study

Minnesota

Children's Hospital & Clinic

St.Paul, MN
PI: Dr. Mary Ella Pierpont
Coordinator: Erin Olson
Phone Number: 612-813-7737
E-mail address: erin.olson@childrensmn.org
Enrolling patients in the following studies:
Marfan

Missouri

Washington University in St. Louis

St. Louis, MO
PI: Dr. Angela Sharkey
Coordinator: Cheryl Rainey
Phone Number: 314-454-6147
E-mail address: rainey_c@kids.wustl.edu
Enrolling patients in the following studies:
Marfan

New York

Children's Hospital at Montefiore

Bronx, NY
PI: Leo Lopez, MD
Coordinator: Kelly Balem
Phone Number: 718-741-2384
E-mail address: kbrownb@montefiore.org
Enrolling patients in the following studies:
Pediatric Echocardiography Z-Score and Electrocardiogram Database Project

Children's Hospital of New York

New York, NY
PI: Dr. Wyman Lai
Coordinator: Rosalind Korsin, RN
Phone Number: 212-342-0524
E-mail address: rk271@Columbia.edu
Enrolling patients in the following studies:
Single Ventricle Reconstruction Extension
Fontan Follow-up Study
Marfan

Mt. Sinai Hospital

New York, NY
PI: Dr. Bruce Gelb
Coordinator: Kerri Lee, MS
Phone Number: 212-241-6012
E-mail address: kerri.lee@mssm.edu
Enrolling patients in the following studies:
Marfan

New York Presbyterian Hospital/Weill Cornell Medical Center

New York, NY
PI: Drs. Mary Roman and Dick Devereux
Coordinator: Rosalind Korsin, RN
Phone Number: 212-342-0524
E-mail address: rk271@Columbia.edu
Enrolling patients in the following studies:
Marfan

North Carolina

Duke University Medical Center

Durham, NC
PI: Dr. Jennifer Li
Coordinator: Ming Xu, RN, MSN
Phone Number: 919-668-6352
E-mail address: mingfen.xu@duke.edu
Enrolling patients in the following studies:
Single Ventricle Reconstruction Extension Study
Fontan Follow-up Study
Marfan

Ohio

Prairieland Consortium

Cincinnati, OH
Cincinnati Children's Hospital
PIs: Dr. Woodrow Benson
Dr. James Cnota
Coordinators: Michelle S. Hamstra, MS & Kathryn M. Hogan, MS
Phone Number: 513-803-1153
E-mail address: CardiologyResearchTeam@cchmc.org
Enrolling patients in the following studies:
Single Ventricle Reconstruction Extension Study
Marfan
Indianapolis, IN
Riley Children's Hospital
PI: Dr. R. Mark Payne

Pennsylvania

Children's Hospital of Philadelphia

Philadelphia, PA
PIs: Dr. Robert Shaddy
Dr. J. William Gaynor
Dr. Stephen Paridon
Coordinator: Nicole Mirarchi RN, BSN, MA
Phone Number: 267-426-7214
E-mail address: mirarchi@email.chop.edu
Enrolling patients in the following studies:
Single Ventricle Reconstruction Extension Study
Fontan Follow-up Study
Marfan

University of Pennsylvania

Philadelphia, PA
PI: Dr. Reed Pyeritz
Coordinator: Agbenu Ejembi
Phone Number: 267-426-9272
E-mail address: ejembia@email.chop.edu
Enrolling patients in the following studies:
Marfan

Children's Hospital of Pittsburgh

Pittsburgh, PA
PI Name: Dr. Steven Webber
Coordinator: Kevin Stiegler RN, CRC
Phone Number: 412-692-6516
E-mail address: kevin.stiegler@chp.edu
Enrolling patients in the following studies:
Marfan

South Carolina

Medical University of South Carolina

Charleston, SC
PIs: Dr. J. Philip Saul
Dr. Andrew Atz
Coordinator: Patricia Infinger, CCRP
Phone: 843-792-7857
E-mail address: infingep@musc.edu
Enrolling patients in the following studies:
Single Ventricle Reconstruction Extension Study
Fontan Follow-up Study
Marfan

Tennessee

Vanderbilt University Medical Center - Monroe Carell Jr Children's Hospital

Nashville, TN
PI: Dr. Larry Markham
Coordinator: Cheryl Kinnard RN, CCRC
Phone Number: 615-343-2880
E-mail address: cheryl.kinnard@vanderbilt.edu
Enrolling patients in the following studies:
Marfan

Texas

Texas Children's Hospital

Houston, TX
PIs: Dr. Daniel Penney
Dr. Dean Andropolous
Dr. Charles Fraser
Dr. Lara Shekerdemian
Coordinator: Tunu Teneude
Phone Number: 832-826-5763
E-mail address: tteneude@bcm.edu
Enrolling patients in the following studies:
Marfan

Utah

Primary Children's Medical Center

Salt Lake City, UT
PIs: Dr. Richard Williams
Dr. L. LuAnn Minich
Coordinator: Marian Shearrow
Phone Number: 801-662-5487
E-mail address: Marian.Shearrow@intermountainmail.org
Enrolling patients in the following studies:
Single Ventricle Reconstruction Extension Study
Fontan Follow-up Study
Marfan

Washington

Children's Hospital and Regional Medical Center

Division of Cardiology, Children's Heart Center
Seattle, WA
PI: Dr. Mark Lewin
Coordinator: Amy Payne
Phone Number: 206-987-5708
E-mail address: amy.payne@seattlechildrens.org
Enrolling patients in the following studies:
Marfan

Wisconsin

Children's Hospital of Wisconsin

Milwaukee, WI
PI: Dr. Nancy Ghanayem
Coordinator: Michelle Otto
Phone Number: 414-266-6154
E-mail address: motto2@chw.org
Enrolling patients in the following studies:
Single Ventricle Reconstruction Extension Study